Tuesday, February 26, 2013

Saying Goodnight to Bedside Manner



They say the average lifespan of a blog is shorter than that of a fruitfly. But Bedside Manner has defied the odds, thriving for nearly six years, the lifespan of the far more appealing toucan.

Now it's time to say goodbye. It's been a great run and we've enjoyed bringing our readers stories about the people who embody compassionate healthcare, the studies that confirm its importance, the programs that spread it. But with so many competing priorities, we can't dedicate the time to the blog that it needs. So thanks for being part of the Bedside Manner community and do check in with us on Facebook, Twitter and YouTube where we'll continue to spread the message of compassionate healthcare.

Friday, February 22, 2013

Rounds for Health Plans

Put yourself in the shoes of the health plan staff who collaborated on these tough patient situations:

The elderly man, just diagnosed with metastatic colon cancer, whose physician promised him that he could receive rehabilitation. It turned out that because of his condition, he was a more appropriate candidate for home care, and his care manager had to tell him so.

The pregnant, single woman with liver failure who ended up delivering her infant in the intensive care unit and has been hospitalized ever since. Friends are taking care of her little girl, who is now a year and a half old.

The anorexic, Hispanic teen whose parents spoke little to no English. Whatever communication did occur had to go through the father, leaving the mother on the sidelines.

These were all cases* discussed during Schwartz Center Rounds sessions at Tufts Health Plan, one of two health insurers (the other is Aetna) that now conduct our signature program.

Why does an insurance company need a forum for staff to discuss challenging patient cases? How much direct patient contact do payer staff really have? In the case of Tufts Health Plan care managers, there is quite a lot of in-depth complex care management being done!

"In complex cases, our care managers often make home visits. They are really embedded in our members' lives," says Tufts social worker Susan Garrels, LICSW, the program manager for Schwartz Center Rounds at Tufts Health Plan. "They're doing home visits, having discussions about end of life care, and advocating on behalf of members with providers," she said. "These cases can touch many people in our organization and bring out tremendous emotions. We often wall off these feelings in order to address our day to day responsibilities."

Lynn Weidenroth, RN, Debra Collins, RN, Sandy Rabison, MD
at Tufts Health Plan Rounds
Photo credit: Tufts Health Plan
Working for a health plan adds an additional dimension to these challenging cases, according to psychiatrist Samuel "Sandy" Rabison, MD, medical director of behavioral health at Tufts Health Plan and the Rounds facilitator there. "We face all of the ambivalence and antagonism some physicians and patients have toward insurers. A provider tells a patient that ‘of course he can go to rehab,’ but it turns out he doesn't have that benefit. Our care managers are put in a difficult situation of sometimes having to deny care when they'd rather not."

Rounds have been a big hit since they started at Tufts Health Plan last June, with more staff wanting to attend the sessions than the room can accommodate. The organizers are considering live streaming the sessions so more people can participate.

It's been especially helpful for the non-physicians to hear the doctors talk about the cases, according to Dr. Rabison. "There's sometimes the perception that physicians may not be experiencing the same emotional dilemmas that others in the organization are experiencing. Rounds show staff that everyone is working through the same issues."



*some details have been changed to protect patient confidentiality


Wednesday, February 13, 2013

Mapping Our Lives

I've been wanting to write a blog post about this for a while. The Huffington Post spread the word about Cristin Lind's "care map"  in a beautiful story about a month ago. Cristin is the mother of Gabe, a 10-year-old boy with special needs. Cristin was asked to speak to a group of physicians at Harvard Medical School about the experience of raising a child with such complex medical and educational needs. As she struggled to figure out how to explain her life, she started drawing a map of the complex machine that is Gabe's care. With the letter "G" - for Gabe - at the center, she drew a web of colorful ovals representing the multitude of  services, support structures, providers, consultants and others who touch Gabe's life on a regular basis. The map illustrates better than words ever could the experience of being Gabe's mom. And being Gabe too. It's exhausting to look at.

Cristin is now working with Richard Antonelli, MD, at Children's Hospital Boston on evolving her care map into a technique to actively engage families in care coordination with providers. Here's what she says: "Care mapping provides a comprehensive snapshot of a family’s holistic needs, and enables the entire care team supporting them to appreciate how each of these aspects relate to each other."

I think the care map has many applications for healthcare. For example, we all want to be "known" to our caregivers, but with the time pressures of today's healthcare system, we seldom feel we are. What if each of us brought in a version of a care map to our providers - a graphic representation of the complexity of our lives. Perhaps there would be an oval for the elderly parents we are caring for; another for the psychologist we're seeing for our depression and still another for the struggles we have keeping our weight down and controlling our diabetes. Maybe there would be multiple, overlapping ovals for the values we want to inform our care if ever we're unable to speak for ourselves.

In the new world of patient-centered medical homes, practices are going to have to start getting to know their patients a lot better. Is it unrealistic to think that a clinician would have time to navigate through my entire unwieldy diagram? Maybe, but it would at least get a conversation started. And that's half the battle.